It’s a rare condition that affects less than 1500 people worldwide.
17 year old Liam Derbyshire has it.
It means if he falls asleep he will die. He was given 6 weeks to live at birth … now he’s nearly 18. He’s only lived that long because of his parents … who watch him carefully.
The condition is called Congenital Central Hypoventilation Syndrome … and it means when you fall asleep … your brain stops telling you to breath… Liam has to be placed on a ventilator before he sleeps each night.